{"id":32043,"date":"2020-06-11T00:05:30","date_gmt":"2020-06-11T05:05:30","guid":{"rendered":"https:\/\/differentdream.com\/?p=32043"},"modified":"2020-06-11T00:05:30","modified_gmt":"2020-06-11T05:05:30","slug":"learning-to-give-grace-to-ourselves-and-to-our-children","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/learning-to-give-grace-to-ourselves-and-to-our-children\/","title":{"rendered":"Learning to Give Grace to Ourselves and to Our Children"},"content":{"rendered":"\n[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title featured_image=&#8221;off&#8221; _builder_version=&#8221;4.4.2&#8243; title_font=&#8221;||||||||&#8221; title_text_color=&#8221;#42313A&#8221; title_font_size=&#8221;40px&#8221; meta_font_size=&#8221;14px&#8221; background_color=&#8221;#B4DBC0&#8243; custom_padding=&#8221;50px||50px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243; custom_padding=&#8221;0px||0px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.4.3&#8243; _dynamic_attributes=&#8221;src&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.4.3&#8243; global_colors_info=&#8221;{}&#8221;]<p><span><i>Learning to give grace to ourselves and to our children is a life long endeavor. Guest blogger Laura Spiegel shares her most recent lesson about learning to give grace in this post.<\/i><\/span><\/p>\n<p><span>It\u2019s 9:30 on a Tuesday, and I\u2019ve had it. I\u2019ve spent close to 12 hours bargaining, bribing, and pleading with my six-year-old to do her respiratory treatment for her cystic fibrosis (CF). This treatment is supposed to happen twice daily. Tonight, it will be a miracle if we can get in the one.<\/span><\/p>\n<p><span>I announce that \u201cI\u2019m done\u201d and head outside to the swing set. I cram myself into the small, plastic holster designed for riders much younger than forty. I swing back and forth in the cool air. Out here, the night is calm.<\/span><\/p>\n<p><span>It\u2019s hard to believe that just a few feet away, a storm is brewing. My daughter is refusing to bathe. Shoes are apparently optional this time of year, and her toes are caked with layers of dirt come twilight. My husband is asking her to choose between the lesser of two evils. A treatment or a bath.<\/span><\/p>\n<p><span>I close my eyes and take a deep breath. My son is now beside me. He\u2019s nine \u2013 that age where some moments he looks and sounds like a small child, and others, he\u2019s an observant sage with the wisdom of an adult.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>Tonight is the latter.<\/span><\/p>\n<p><span>\u201cI wouldn\u2019t want to do mask and vest either if I were her,\u201d he says, pumping his legs next to me. \u201cIt\u2019s no fun, and she has to do it alone.\u201d<\/span><\/p>\n<p><span>\u201cShe\u2019s not really alone,\u201d I begin. \u201cWe\u2019re right there &#8212;\u201d<\/span><\/p>\n<p><span>\u201cBut she is,\u201d he interrupts. \u201cIf you think about it, she\u2019s the only one who has to do this. The rest of us get to just sit there.\u201d<\/span><\/p>\n<p><span>He\u2019s right, of course.<\/span><\/p>\n<p><span>\u201cI\u2019d probably pitch a giant fit if I had to do vest,\u201d my son continues. \u201cI\u2019d, like, threaten to run away every day.\u201d<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>His musings are cut short as a movie soundtrack swells from inside. My husband appears at the back door.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>\u201cShe\u2019s all set,\u201d he declares. \u201cMovie\u2019s on.\u201d<\/span><\/p>\n<p><span>My kids fall into bed at 11:30, movie finished, 50% of the day\u2019s treatments completed.<\/span><\/p>\n<p><span>I share this story with a friend as she drinks her coffee and counsels me over FaceTime the next morning.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>\u201cYour son is right!\u201d she exclaims. \u201cThink how you would be if you had to do treatments twice a day when you were six. Can you imagine?\u201d<\/span><\/p>\n<p><span>I can. An image comes to mind of a photo from around that age. I\u2019m mid-air, pig tails flying, tears streaming down my cheeks. I\u2019m screaming about something \u2013 who knows what? \u2013 and my mom has had it.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>\u201cYou\u2019re right,\u201d I admit. \u201cI would\u2019ve been a mess.\u201d<\/span><\/p>\n<p><span>\u201cYou are learning to give grace to yourself \u2013 and to your daughter,\u201d my friend says. \u201cYou\u2019re both doing your best. Some days are just harder than others, and that\u2019s okay. You can\u2019t beat yourself up over it.\u201d<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>Grace. It has many definitions, but one of my favorites from Merriam-Webster is \u201ccourteous good will.\u201d I also love the scripture use, which refers primarily to enabling spiritual healing through mercy and love.<\/span><\/p>\n<p><span>I sit with this for a moment.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>Can I give myself courteous good will? Can I do a better job of showing mercy and love to my daughter when she needs it the most?<\/span><\/p>\n<p><span>I think I can.<\/span><\/p>\n<p><span>I thank my friend for meeting me where I am, yet again. As a fellow CF mama, she just gets it.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>\u201cDon\u2019t forget,\u201d she says. \u201cWhen I talk to you, I\u2019m also talking to myself. I\u2019m learning to give grace too.\u201d<\/span><\/p>\n<p><span>Later that day, my daughter and I come up with a list of fun activities that we can do together during her respiratory treatments. Writing stories, doing make-up, baking cookies. We come up with thirty-five activities that she can choose to do with me, with her brother, or with the whole family.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>Variety, fun, and control are all powerful motivators of engagement for my daughter. For now, this hits on them all.<\/span><\/p>\n<p><span>I can hardly believe it when she proudly grabs her vest and announces, \u201cI\u2019m ready to pick out an activity!\u201d<\/span><\/p>\n<p><span>I know this won\u2019t last forever. At some point, the newness of our plan will go stale. But for now, I\u2019ll take it along with a dose of courteous good will for us all.<\/span><\/p>\n<p><span>We aren\u2019t perfect, but with a little bit of grace, we can do hard things.<span class=\"Apple-converted-space\">\u00a0<\/span><\/span><\/p>\n<p><span>And we are learning to give grace together.<\/span><\/p>\n<p><span><i>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/i><\/span><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243; background_color=&#8221;#b4dbc0&#8243; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&#8221; image=&#8221;http:\/\/differentdream.com\/wp-content\/uploads\/2020\/05\/Headshot.jpg&#8221; icon_placement=&#8221;left&#8221; image_max_width=&#8221;100px&#8221; content_max_width=&#8221;800px&#8221; _builder_version=&#8221;4.4.3&#8243; _dynamic_attributes=&#8221;title&#8221; header_font=&#8221;Rubik|500|||||||&#8221; header_text_color=&#8221;#44465f&#8221; header_font_size=&#8221;14px&#8221; header_line_height=&#8221;32px&#8221; body_font=&#8221;Rubik||||||||&#8221; body_text_color=&#8221;rgba(0,6,69,0.6)&#8221; body_link_text_color=&#8221;#ffffff&#8221; custom_css_main_element=&#8221;font-weight: 400;&#8221; border_radii_image=&#8221;on|100px|100px|100px|100px&#8221; border_color_all_image=&#8221;#ffffff&#8221; box_shadow_style_image=&#8221;preset1&#8243; box_shadow_vertical_image=&#8221;20px&#8221; box_shadow_blur_image=&#8221;40px&#8221; box_shadow_color_image=&#8221;rgba(68,70,95,0.27)&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<p><span>Laura Spiegel spent 12 years at the world\u2019s largest biotech company, partnering with professionals and care teams to help people with special needs and disabilities lead full and happy lives. In 2013 her daughter was diagnosed with cystic fibrosis. Laura now hosts\u00a0<\/span><a href=\"https:\/\/www.paintherincolor.com\/\"><strong>Paint Her in Color<\/strong><\/a><span>, a website that offers emotional support to parents of children with special medical, developmental, or behavioral health care needs. When she isn\u2019t reading, writing, or soaking up time with her husband and kids, Laura can be reached at <\/span><a href=\"https:\/\/www.paintherincolor.com\/\"><strong>Paint Her in Color<\/strong><\/a><span>, by email at\u00a0<\/span><strong><a href=\"mailto:laura@paintherincolor.com\">laura@paintherincolor.com<\/a><\/strong><span>, and on <\/span><a href=\"https:\/\/www.facebook.com\/paintherincolor\"><strong>Facebook<\/strong><\/a><span> and <\/span><a href=\"https:\/\/twitter.com\/her_color\"><strong>Twitter<\/strong><\/a><span>.<\/span><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_comments _builder_version=&#8221;4.4.2&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#EBDCB2&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.4.2&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.4.2&#8243; header_font=&#8221;EB Garamond|600|||||||&#8221; header_text_color=&#8221;#B6452C&#8221; header_font_size=&#8221;50px&#8221; header_text_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;]<h1 style=\"text-align: center;\">Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.4.2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;current&#8221; show_more=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243; header_text_color=&#8221;#42313A&#8221; meta_font=&#8221;||on||||||&#8221; read_more_font=&#8221;|||on|||||&#8221; read_more_text_color=&#8221;#B6452C&#8221; read_more_font_size=&#8221;12px&#8221; pagination_text_color=&#8221;#B6452C&#8221; pagination_font_size=&#8221;20px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"<p>Learning to give grace takes practice. Laura Spiegel tells how cystic fibrosis breathing treatments became an exercise in giving grace to herself and to her daughter.<\/p>\n","protected":false},"author":1,"featured_media":32044,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[3559,3574],"tags":[4173,4157],"class_list":["post-32043","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-self-care-and-stress","tag-breathing-treatments","tag-cystic-fibrosis"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Learning to Give Grace to Ourselves and to Our Children - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Learning to give grace takes practice. 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