{"id":31229,"date":"2020-01-30T00:05:14","date_gmt":"2020-01-30T06:05:14","guid":{"rendered":"https:\/\/differentdream.com\/?p=31229"},"modified":"2020-01-30T00:05:14","modified_gmt":"2020-01-30T06:05:14","slug":"the-thing-about-ea-tef-people-dont-mention","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/the-thing-about-ea-tef-people-dont-mention\/","title":{"rendered":"The Thing About EA\/TEF People Don’t Mention"},"content":{"rendered":"\n\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.4.2″][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.4.2″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.4.2″ custom_padding=”0px||0px|||”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.4.3″ _dynamic_attributes=”src”][\/et_pb_image][et_pb_text _builder_version=”4.9.2″ hover_enabled=”0″ sticky_enabled=”0″]

The thing about EA\/TEF that most people don’t mention isn’t just one thing. It’s many things as today’s guest blogger Amanda Alcamo explains. What’s the one thing you would add to what she says? Share your one thing in the comment box below.<\/em><\/p>\n

The thing about EA\/TEF that most people don\u2019t mention is the utter shock that comes over you when the surgeon breaks the news. We had no idea that there was anything wrong with our little one until the day after he was born,\u00a0when I\u00a0finally got to hold him for the first time, I noticed a small tube coming from his mouth. I recall not being too focused on that as much as the fact of this blessing that I was able to hold in my arms.<\/p>\n

It wasn\u2019t until hours later when the surgeon came into my room and explained what he was going to do. \u201cYour son was born with what we call tracheal esophageal fistula with an esophageal atresia<\/strong><\/a>. Basically, his esophagus only grew the top half and then was capped off while the bottom half actually grew into this trachea.\u201d<\/p>\n

My response was, \u201cExcuse me what?\u201d<\/p>\n

As he explained it again and drew a diagram all I could think about was How did no one notice this before he was born?<\/em> and When can I take him home?<\/em><\/p>\n

Our surgeon said there was no easy way to determine that this is something babies have prior to birth and that it’s very rare. He was also extremely confident that our baby would go home in about 2 weeks.<\/p>\n

The next morning we all rolled down to the surgery wing of the hospital. I leaned over my sweet 2-day-old baby\u2019s face and whispered, \u201cToday is the day the Lord has made, I will rejoice and be glad in it.\u201d<\/em> (Psalm 118:24)<\/p>\n

Nearly 3 hours later we were able to see our sweet boy. His surgery was successful, and we took him home just over 2 weeks later. But the fear and unknown has continued for years.<\/p>\n

Life with\u00a0an\u00a0EA\/TEF<\/strong><\/a> kiddo is different, challenging, and sometimes scary. The dozens of time we have to explain his situation to\u00a0Drs\u00a0or teachers can be exhausting. But something sticks in my mind every time I begin to doubt that we endure this for a purpose. Each person we explain this to may not have a personal relationship with Jesus yet. We do. And we know that the God created Isaac formed our son in my womb. He gave our baby life so that we have opportunities to share about God\u2019s perfect love, His grace, and His strength when we are weary.<\/p>\n

This past summer we learned of another defect with our son\u2019s bronchial tubes. He endured another long surgery to have his left upper lobe removed. Even then, exhausted, tested, and weary, I found myself dozing off in the waiting room during the procedure. I reminded myself of Psalm 118:24 again.<\/p>\n

\u201cToday is the day the Lord has made, I will rejoice and be glad in it.\u201d\u00a0<\/em><\/p>\n

It is, and He did.
I did, and I am.<\/p>\n

Our son is a blessing and a warrior. I count it all as a blessing now that\u00a0we get\u00a0to<\/em> endure this journey in life. \u00a0Through our son, we are reminded how precious it really is and how loved we really are. That’s the thing about EA\/TEF<\/strong><\/a> people don’t mention.<\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”http:\/\/jolenephilo.com\/staging\/wp-content\/uploads\/2020\/01\/Image-1.jpeg” icon_placement=”left” image_max_width=”100px” content_max_width=”800px” _builder_version=”4.9.2″ _dynamic_attributes=”title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” hover_enabled=”0″ custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” locked=”off” title_text=”Image-1″ sticky_enabled=”0″]

I am a working mother to Isaac, our sweet 3-yearold EA\/TEF<\/strong><\/a> blessing and wife to my amazing husband Jacob. When Isaac was born in 2016 we had no idea what our life would be like raising a child with such a condition but with every illness we have tried to endure keeping Christ in the forefront. Raising a child with such needs and facing the unknown led me down a dark path of loneliness\u00a0and blaming myself. Through a therapist and my family I came to terms with the reality the PTSD for parents of kids with chronic conditions<\/strong><\/a>. I continue to share the good news of Christ and His hope, joy, and freedom with all who hear our story.<\/em><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_comments _builder_version=”4.4.2″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.4.2″][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.9.2″ use_background_color_gradient=”on” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ background_color_gradient_direction=”159deg” custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.9.2″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.3.4″][et_pb_text _builder_version=”4.4.2″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false”]

Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.3.4″][et_pb_signup mailchimp_list=”JolenePhilo|89f719a52b” layout=”bottom_top” first_name_fullwidth=”off” last_name_field=”off” email_fullwidth=”off” module_class=”custom_emailoptin” _builder_version=”4.4.2″ form_field_focus_background_color=”#42313A” background_enable_color=”off” custom_button=”on” button_text_size=”16px” button_text_color=”#42313A” button_bg_color=”#B4DBC0″ button_border_width=”2px” button_border_radius=”0px” button_font=”|||on|||||” button_use_icon=”off” button_custom_margin=”5px||||false|false” button_custom_padding=”0px|0px|0px|0px|false|false” custom_padding=”0px|0px|0px|0px|false|false” border_width_all_fields=”2px”][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.4.2″ custom_padding=”0px|||||”][et_pb_row _builder_version=”4.4.2″][et_pb_column type=”4_4″ _builder_version=”4.4.2″][et_pb_text _builder_version=”4.4.2″ header_font=”EB Garamond|600|||||||” header_text_color=”#B6452C” header_font_size=”50px” header_text_shadow_style=”preset1″]

Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.4.2″][et_pb_column type=”4_4″ _builder_version=”4.4.2″][et_pb_blog fullwidth=”off” posts_number=”3″ include_categories=”current” show_more=”on” _builder_version=”4.4.2″ header_text_color=”#42313A” meta_font=”||on||||||” read_more_font=”|||on|||||” read_more_text_color=”#B6452C” read_more_font_size=”12px” pagination_text_color=”#B6452C” pagination_font_size=”20px”][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n\n","protected":false},"excerpt":{"rendered":"

What’s the one thing about EA\/TEF no one ever mentioned to you? Guest blogger Amanda Alcamo gives her answer in today’s post, and you can add your answer, too.<\/p>\n","protected":false},"author":1,"featured_media":31233,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"What's\n\nThe thing about EA\/TEF that most people don't mention isn't just one thing. It's many things as today's guest blogger Amanda Alcamo explains. What's the one thing you would add to what she says? Share your one thing in the comment box below.<\/em>\n\nThe thing about EA\/TEF that most people don\u2019t mention is the utter shock that comes over you when the surgeon breaks the news. We had no idea that there was anything wrong with our little one until the day after he was born,\u00a0when I\u00a0finally got to hold him for the first time, I noticed a small tube coming from his mouth. I recall not being too focused on that as much as the fact of this blessing that I was able to hold in my arms.\n\nIt wasn\u2019t until hours later when the surgeon came into my room and explained what he was going to do. \u201cYour son was born with what we call tracheal esophageal fistula with an esophageal atresia<\/strong><\/a>. Basically, his esophagus only grew the top half and then was capped off while the bottom half actually grew into this trachea.\u201d\n\nMy response was, \u201cExcuse me what?\u201d\n\nAs he explained it again and drew a diagram all I could think about was How did no one notice this before he was born?<\/em> and When can I take him home?<\/em>\n\nOur surgeon said there was no easy way to determine that this is something babies have prior to birth and that it's very rare. He was also extremely confident that our baby would go home in about 2 weeks.\n\nThe next morning we all rolled down to the surgery wing of the hospital. I leaned over my sweet 2-day-old baby\u2019s face and whispered, \u201cToday is the day the Lord has made, I will rejoice and be glad in it.\u201d<\/em> (Psalm 118:24)\n\nNearly 3 hours later we were able to see our sweet boy. His surgery was successful, and we took him home just over 2 weeks later. But the fear and unknown has continued for years.\n\nLife with\u00a0an\u00a0EA\/TEF<\/strong><\/a> kiddo is different, challenging, and sometimes scary. The dozens of time we have to explain his situation to\u00a0Drs\u00a0or teachers can be exhausting. But something sticks in my mind every time I begin to doubt that we endure this for a purpose. Each person we explain this to may not have a personal relationship with Jesus yet. We do. And we know that the God created Isaac formed our son in my womb. He gave our baby life so that we have opportunities to share about God\u2019s perfect love, His grace, and His strength when we are weary.\n\nThis past summer we learned of another defect with our son\u2019s bronchial tubes. He endured another long surgery to have his left upper lobe removed. Even then, exhausted, tested, and weary, I found myself dozing off in the waiting room during the procedure. I reminded myself of Psalm 118:24 again.\n\n\u201cToday is the day the Lord has made, I will rejoice and be glad in it.\u201d\u00a0<\/em>\n\nIt is, and He did.\nI did, and I am.\n\nOur son is a blessing and a warrior. I count it all as a blessing now that\u00a0we get\u00a0to<\/em> endure this journey in life. \u00a0Through our son, we are reminded how precious it really is and how loved we really are. That's the thing about EA\/TEF<\/strong><\/a> people don't mention.\n\n\"What'sI am a working mother to Isaac, our sweet 3-yearold EA\/TEF<\/strong><\/a> blessing and wife to my amazing husband Jacob. When Isaac was born in 2016 we had no idea what our life would be like raising a child with such a condition but with every illness we have tried to endure keeping Christ in the forefront. Raising a child with such needs and facing the unknown led me down a dark path of loneliness\u00a0and blaming myself. Through a therapist and my family I came to terms with the reality the PTSD for parents of kids with chronic conditions<\/strong><\/a>. I continue to share the good news of Christ and His hope, joy, and freedom with all who hear our story.<\/em>\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3615],"tags":[4000,4114],"class_list":["post-31229","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-encouragement","tag-ea-tef-awareness-month","tag-psalm-11824"],"yoast_head":"\nThe Thing About EA\/TEF People Don't Mention - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"What's the one thing about EA\/TEF no one ever mentioned to you? Guest blogger Amanda Alcamo gives her answer in today's post. 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