{"id":31176,"date":"2020-01-09T00:05:26","date_gmt":"2020-01-09T06:05:26","guid":{"rendered":"https:\/\/differentdream.com\/?p=31176"},"modified":"2020-01-09T00:05:26","modified_gmt":"2020-01-09T06:05:26","slug":"a-normal-life-with-ea","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/","title":{"rendered":"A Normal Life with EA"},"content":{"rendered":"\n\n\n\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.4.2″][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.4.2″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.4.2″ custom_padding=”0px||0px|||”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.4.3″ _dynamic_attributes=”src”][\/et_pb_image][et_pb_text _builder_version=”4.9.2″]

A normal life with EA is possible according to Logan Ebert’s firsthand account of how his long gap, pure esophageal atresia (EA)<\/strong><\/a> was repaired. I’m delighted to welcome Logan as today’s guest blogger, EA\/TEF<\/strong><\/a> survivor, and thriving 23-year-old young man.<\/em><\/p>\n

The first two years of my life were anything but normal. The traditional struggles and charms of early parenthood were overshadowed by complex medical procedures, life-altering decisions, and countless nights sleeping in hotels, the intensive care unit, and anywhere but home. After a long series of surgeries and the unknown, I would eventually live with what was thought to be the impossible: a normal life with EA<\/strong><\/a>.<\/p>\n

A couple of months before I was born, my parents were told I most likely had EA<\/strong><\/a> and possibly VACTREL<\/strong><\/a>.\u00a0 I was born with long gap, pure EA<\/a><\/strong> and heart defects. The options for long gap EA<\/strong><\/a> were to use the colon as an esophagus, a spiral myotomy, or pull the stomach up into the chest (gastric pull-up). These were the popular fixes at the time, and could be performed by a handful of surgeons. This is still the case almost 25 years later, even though these remedies come with numerous complications and cause future problems that prevent the patient from living a normal life. <\/span><\/p>\n

My parents, desperate and two years before Google was invented, found a snippet in a medical journal at the University of Denver medical library that had just been written by Dr. John Foker<\/strong><\/a>. He was a surgeon at the University of Minnesota who had just developed an innovative and experimental approach to treating my birth defect through tension-forced growth, essentially growing my esophagus out of the tissue that was already there. Miraculously, Dr. Foker had only begun to use this method on patients with longer gaps just weeks before I was born, making me Dr. Foker\u2019s second patient at only 2 months of age. I was a true guinea pig when it comes to treating EA<\/strong><\/a> in this way. <\/span><\/p>\n

The drama of my early childhood is something I\u2019ve only ever experienced through stories. Despite routine checkups and a few cool scars, very little has physically separated me from my peers\u2013apart from being extremely handsome, and humble. As I finish up my dinner of two freshly grilled brats, a side of orzo, and a salad, I can reflect on my ability to explore and enjoy the expanse of the culinary world. I eat anything from red meats to popcorn, to spicy curry and pad thai. I haven’t missed out in the slightest. In the summer, I routinely go on high-alpine hikes, and in the winter I\u2019m on the ski slopes almost every weekend. I scuba dive, have finished a triathlon, and para-sailed\u2013all with what were once considered compromised lungs.\u00a0<\/span><\/p>\n

Dr. Foker has since retired, but not before establishing a world-class EA\/TEF program at Boston Children\u2019s Hospital<\/strong><\/a>. Unfortunately, there are children every day who are born with EA<\/strong><\/a>, and parents that are presented with the options that were available at the time of my birth. I am eternally blessed that my family sought out Dr. Foker, took a bold chance on an experimental procedure, and helped me live a normal life with EA<\/strong><\/a>, the life I want. <\/span><\/p>\n

My hope is that my story will give parents and children of the EA<\/strong><\/a> community a reason to believe in the miraculous, that there is a promise of living a normal life with EA<\/strong><\/a>. Further, I hope to advocate for the tremendous work that has been done by the team at Boston Children\u2019s to carry on Dr. Foker\u2019s legacy<\/strong><\/a>.\u00a0<\/span><\/p>\n

My parents, Fred and Mara Lee Ebert, would be happy to answer any questions you may have. They can be reached at <\/span>MaraLeeSonoma@icloud.com<\/a>.<\/span><\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@” icon_placement=”left” image_max_width=”100px” content_max_width=”800px” _builder_version=”4.4.2″ _dynamic_attributes=”image,title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” locked=”off”]

Logan Ebert is 23 and lives in Denver, Colorado. A recent graduate of the University of Denver, Logan enjoys snowboarding, hiking, camping, biking, and any outdoor sport. Born with long-gap esophageal atresia, Logan was the second recipient of what is now known as the Foker Method, which he attributes largely to his ability to live a normal and active life.<\/span><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_comments _builder_version=”4.4.2″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.4.2″][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.9.2″ use_background_color_gradient=”on” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ background_color_gradient_direction=”159deg” custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.9.2″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.3.4″][et_pb_text _builder_version=”4.4.2″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false”]

Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.3.4″][et_pb_signup mailchimp_list=”JolenePhilo|89f719a52b” layout=”bottom_top” first_name_fullwidth=”off” last_name_field=”off” email_fullwidth=”off” module_class=”custom_emailoptin” _builder_version=”4.4.2″ form_field_focus_background_color=”#42313A” background_enable_color=”off” custom_button=”on” button_text_size=”16px” button_text_color=”#42313A” button_bg_color=”#B4DBC0″ button_border_width=”2px” button_border_radius=”0px” button_font=”|||on|||||” button_use_icon=”off” button_custom_margin=”5px||||false|false” button_custom_padding=”0px|0px|0px|0px|false|false” custom_padding=”0px|0px|0px|0px|false|false” border_width_all_fields=”2px”][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.4.2″ custom_padding=”0px|||||”][et_pb_row _builder_version=”4.4.2″][et_pb_column type=”4_4″ _builder_version=”4.4.2″][et_pb_text _builder_version=”4.4.2″ header_font=”EB Garamond|600|||||||” header_text_color=”#B6452C” header_font_size=”50px” header_text_shadow_style=”preset1″]

Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.4.2″][et_pb_column type=”4_4″ _builder_version=”4.4.2″][et_pb_blog fullwidth=”off” posts_number=”3″ include_categories=”current” show_more=”on” _builder_version=”4.4.2″ header_text_color=”#42313A” meta_font=”||on||||||” read_more_font=”|||on|||||” read_more_text_color=”#B6452C” read_more_font_size=”12px” pagination_text_color=”#B6452C” pagination_font_size=”20px”][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n\n\n\n","protected":false},"excerpt":{"rendered":"

Is a normal life with EA possible? Yes, says today’s guest blogger, thanks to the ingenious Foker method that was brand-new 23 years ago.<\/p>\n","protected":false},"author":1,"featured_media":31179,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"Is\n\nA normal life with EA is possible according to Logan Ebert's firsthand account of how his long gap, pure esophageal atresia (EA)<\/strong><\/a> was repaired. I'm delighted to welcome Logan as today's guest blogger, EA\/TEF<\/strong><\/a> survivor, and thriving 23-year-old young man.<\/em>\n\nThe first two years of my life were anything but normal. The traditional struggles and charms of early parenthood were overshadowed by complex medical procedures, life-altering decisions, and countless nights sleeping in hotels, the intensive care unit, and anywhere but home. After a long series of surgeries and the unknown, I would eventually live with what was thought to be the impossible: a normal life with EA<\/strong><\/a>.\n\nA couple of months before I was born, my parents were told I most likely had EA<\/strong><\/a> and possibly VACTREL<\/strong><\/a>.\u00a0 I was born with long gap, pure EA<\/a><\/strong> and heart defects. The options for long gap EA<\/strong><\/a> were to use the colon as an esophagus, a spiral myotomy, or pull the stomach up into the chest (gastric pull-up). These were the popular fixes at the time, and could be performed by a handful of surgeons. This is still the case almost 25 years later, even though these remedies come with numerous complications and cause future problems that prevent the patient from living a normal life. <\/span>\n\nMy parents, desperate and two years before Google was invented, found a snippet in a medical journal at the University of Denver medical library that had just been written by Dr. John Foker<\/strong><\/a>. He was a surgeon at the University of Minnesota who had just developed an innovative and experimental approach to treating my birth defect through tension-forced growth, essentially growing my esophagus out of the tissue that was already there. Miraculously, Dr. Foker had only begun to use this method on patients with longer gaps just weeks before I was born, making me Dr. Foker\u2019s second patient at only 2 months of age. I was a true guinea pig when it comes to treating EA<\/strong><\/a> in this way. <\/span>\n\nThe drama of my early childhood is something I\u2019ve only ever experienced through stories. Despite routine checkups and a few cool scars, very little has physically separated me from my peers\u2013apart from being extremely handsome, and humble. As I finish up my dinner of two freshly grilled brats, a side of orzo, and a salad, I can reflect on my ability to explore and enjoy the expanse of the culinary world. I eat anything from red meats to popcorn, to spicy curry and pad thai. I haven't missed out in the slightest. In the summer, I routinely go on high-alpine hikes, and in the winter I\u2019m on the ski slopes almost every weekend. I scuba dive, have finished a triathlon, and para-sailed\u2013all with what were once considered compromised lungs.\u00a0<\/span>\n\nDr. Foker has since retired, but not before establishing a world-class EA\/TEF program at Boston Children\u2019s Hospital<\/strong><\/a>. Unfortunately, there are children every day who are born with EA<\/strong><\/a>, and parents that are presented with the options that were available at the time of my birth. I am eternally blessed that my family sought out Dr. Foker, took a bold chance on an experimental procedure, and helped me live a normal life with EA<\/strong><\/a>, the life I want. <\/span>\n\nMy hope is that my story will give parents and children of the EA<\/strong><\/a> community a reason to believe in the miraculous, that there is a promise of living a normal life with EA<\/strong><\/a>. Further, I hope to advocate for the tremendous work that has been done by the team at Boston Children\u2019s to carry on Dr. Foker\u2019s legacy<\/strong><\/a>.\u00a0<\/span>\n\nMy parents, Fred and Mara Lee Ebert, would be happy to answer any questions you may have. They can be reached at <\/span>MaraLeeSonoma@icloud.com.<\/span>\n\nLogan Ebert is 23 and lives in Denver, Colorado. A recent graduate of the University of Denver, Logan enjoys snowboarding, hiking, camping, biking, and any outdoor sport. Born with long-gap esophageal atresia, Logan was the second recipient of what is now known as the Foker Method, which he attributes largely to his ability to live a normal and active life. <\/span><\/em>\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3560,3559],"tags":[4109,3826,4110],"class_list":["post-31176","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-different-dream","tag-dr-john-foker","tag-ea-tef","tag-vactrel"],"yoast_head":"\nA Normal Life with EA - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Is a normal life with EA possible? Yes, says today's guest blogger, thanks to the ingenious Foker method that was brand-new 23 years ago.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Normal Life with EA - Jolene Philo Staging\" \/>\n<meta property=\"og:description\" content=\"Is a normal life with EA possible? Yes, says today's guest blogger, thanks to the ingenious Foker method that was brand-new 23 years ago.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/\" \/>\n<meta property=\"og:site_name\" content=\"Jolene Philo Staging\" \/>\n<meta property=\"article:published_time\" content=\"2020-01-09T06:05:26+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/jolenephilo.com\/staging\/wp-content\/uploads\/2020\/01\/200109-eatef.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"jphilo\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/jolenephilo.com\/staging\/wp-content\/uploads\/2020\/01\/200109-eatef.png\" \/>\n<meta name=\"twitter:creator\" content=\"@homeagainpodcst\" \/>\n<meta name=\"twitter:site\" content=\"@homeagainpodcst\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"jphilo\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/\"},\"author\":{\"name\":\"jphilo\",\"@id\":\"http:\/\/jolenephilo.com\/staging\/#\/schema\/person\/c4baf673fcd3485ec750b9d2a7780d91\"},\"headline\":\"A Normal Life with EA\",\"datePublished\":\"2020-01-09T06:05:26+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/\"},\"wordCount\":1493,\"commentCount\":0,\"publisher\":{\"@id\":\"http:\/\/jolenephilo.com\/staging\/#\/schema\/person\/c4baf673fcd3485ec750b9d2a7780d91\"},\"image\":{\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/jolenephilo.com\/staging\/wp-content\/uploads\/2020\/01\/Dr.-Foker.jpg\",\"keywords\":[\"Dr. John Foker\",\"EA TEF\",\"VACTREL\"],\"articleSection\":[\"Advocacy\",\"Different Dream\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/\",\"url\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/\",\"name\":\"A Normal Life with EA - Jolene Philo Staging\",\"isPartOf\":{\"@id\":\"http:\/\/jolenephilo.com\/staging\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/jolenephilo.com\/staging\/a-normal-life-with-ea\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/jolenephilo.com\/staging\/wp-content\/uploads\/2020\/01\/Dr.-Foker.jpg\",\"datePublished\":\"2020-01-09T06:05:26+00:00\",\"description\":\"Is a normal life with EA possible? 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