{"id":30971,"date":"2019-11-20T06:00:06","date_gmt":"2019-11-20T12:00:06","guid":{"rendered":"https:\/\/differentdream.com\/?p=30971"},"modified":"2019-11-20T06:00:06","modified_gmt":"2019-11-20T12:00:06","slug":"when-being-thankful-is-hard-as-a-special-needs-parent","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/when-being-thankful-is-hard-as-a-special-needs-parent\/","title":{"rendered":"When Being Thankful Is Hard As a Special Needs Parent"},"content":{"rendered":"\n\n[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243;][et_pb_fullwidth_post_title featured_image=&#8221;off&#8221; _builder_version=&#8221;4.4.2&#8243; title_font=&#8221;||||||||&#8221; title_text_color=&#8221;#42313A&#8221; title_font_size=&#8221;40px&#8221; meta_font_size=&#8221;14px&#8221; background_color=&#8221;#B4DBC0&#8243; custom_padding=&#8221;50px||50px||false|false&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243; custom_padding=&#8221;0px||0px|||&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243;][et_pb_image src=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.4.3&#8243; _dynamic_attributes=&#8221;src&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.9.2&#8243; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;]<p>When being thankful is hard as a special needs parent\u2013\u2013and let&#8217;s not beat around the bush, watching our children struggle doesn&#8217;t lend itself to loud hosannas\u2013\u2013how do we approach Thanksgiving? How do we cultivate gratitude without sugar coating the challenges in our kids&#8217; lives? How can we be grateful when a child&#8217;s condition is going from bad to worse, and we can find nothing to be grateful for?<\/p>\n<p>I stared down those questions more than once when our baby boy struggled to stay alive.<\/p>\n<p>The first time was during my first Thanksgiving as a parent. By then our six-month-old had endured 2 major surgeries, a three week NICU stay, a week long PICU stay, two dozen early morning GI procedures, and an overnight hospital stay on Halloween weekend. I was sleep-deprived, grieving, and my breasts were sore after months of pumping milk for our tube-fed baby who could tolerate nothing but breast milk. The thought of being thankful for my child&#8217;s precarious state of health and the pain our baby had endured was unimaginable. Cruel.<\/p>\n<p>I couldn&#8217;t do it.<\/p>\n<p>The week after my thankless Thanksgiving, I did what proud, new parents everywhere do. I composed a Christmas letter, complete with pictures of our baby boy in his elf costume, to mail to the many friends and family members who had faithfully prayed for us since our son&#8217;s birth.<\/p>\n<p><a href=\"https:\/\/www.hopeanew.com\/hopeanew-blog\/2019\/11\/19\/when-being-thankful-is-hard-as-a-special-needs-parent\"><strong>To read the rest of this post visit the blog at Hope Anew&#8217;s website.<\/strong><\/a><\/p>\n<p><i><em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em><\/i><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243; background_color=&#8221;#b4dbc0&#8243; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221;][et_pb_blurb title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&#8221; image=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@&#8221; icon_placement=&#8221;left&#8221; image_max_width=&#8221;100px&#8221; content_max_width=&#8221;800px&#8221; _builder_version=&#8221;4.4.2&#8243; _dynamic_attributes=&#8221;image,title&#8221; header_font=&#8221;Rubik|500|||||||&#8221; header_text_color=&#8221;#44465f&#8221; header_font_size=&#8221;14px&#8221; header_line_height=&#8221;32px&#8221; body_font=&#8221;Rubik||||||||&#8221; body_text_color=&#8221;rgba(0,6,69,0.6)&#8221; body_link_text_color=&#8221;#ffffff&#8221; custom_css_main_element=&#8221;font-weight: 400;&#8221; border_radii_image=&#8221;on|100px|100px|100px|100px&#8221; border_color_all_image=&#8221;#ffffff&#8221; box_shadow_style_image=&#8221;preset1&#8243; box_shadow_vertical_image=&#8221;20px&#8221; box_shadow_blur_image=&#8221;40px&#8221; box_shadow_color_image=&#8221;rgba(68,70,95,0.27)&#8221; locked=&#8221;off&#8221;]<p>Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.4.2&#8243;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.4.2&#8243;][et_pb_comments _builder_version=&#8221;4.4.2&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#EBDCB2&#8243;][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;3.25&#8243; custom_padding=&#8221;|||&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar _builder_version=&#8221;4.4.2&#8243;][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.9.2&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_start=&#8221;#42313A&#8221; background_color_gradient_end=&#8221;#EBDCB2&#8243; background_color_gradient_direction=&#8221;159deg&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; border_width_all=&#8221;3px&#8221; border_color_all=&#8221;#1c1259&#8243; saved_tabs=&#8221;all&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.9.2&#8243; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_padding=&#8221;25px|0px|5px|0px|false|false&#8221;][et_pb_column type=&#8221;1_2&#8243; module_class=&#8221;horizontal_optin_column_1&#8243; _builder_version=&#8221;4.3.4&#8243;][et_pb_text _builder_version=&#8221;4.4.2&#8243; header_text_align=&#8221;right&#8221; header_text_color=&#8221;#45107a&#8221; header_3_font=&#8221;Dancing Script|700|||||||&#8221; header_3_text_align=&#8221;center&#8221; header_3_text_color=&#8221;#B4DBC0&#8243; header_3_font_size=&#8221;45px&#8221; custom_margin=&#8221;10px||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221;]<h3>Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.3.4&#8243;][et_pb_signup mailchimp_list=&#8221;JolenePhilo|89f719a52b&#8221; layout=&#8221;bottom_top&#8221; first_name_fullwidth=&#8221;off&#8221; last_name_field=&#8221;off&#8221; email_fullwidth=&#8221;off&#8221; module_class=&#8221;custom_emailoptin&#8221; _builder_version=&#8221;4.4.2&#8243; form_field_focus_background_color=&#8221;#42313A&#8221; background_enable_color=&#8221;off&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;16px&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#B4DBC0&#8243; button_border_width=&#8221;2px&#8221; button_border_radius=&#8221;0px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; button_custom_margin=&#8221;5px||||false|false&#8221; button_custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; border_width_all_fields=&#8221;2px&#8221;][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.4.2&#8243; custom_padding=&#8221;0px|||||&#8221;][et_pb_row _builder_version=&#8221;4.4.2&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.4.2&#8243;][et_pb_text _builder_version=&#8221;4.4.2&#8243; header_font=&#8221;EB Garamond|600|||||||&#8221; header_text_color=&#8221;#B6452C&#8221; header_font_size=&#8221;50px&#8221; header_text_shadow_style=&#8221;preset1&#8243;]<h1 style=\"text-align: center;\">Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.4.2&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.4.2&#8243;][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;current&#8221; show_more=&#8221;on&#8221; _builder_version=&#8221;4.4.2&#8243; header_text_color=&#8221;#42313A&#8221; meta_font=&#8221;||on||||||&#8221; read_more_font=&#8221;|||on|||||&#8221; read_more_text_color=&#8221;#B6452C&#8221; read_more_font_size=&#8221;12px&#8221; pagination_text_color=&#8221;#B6452C&#8221; pagination_font_size=&#8221;20px&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n\n","protected":false},"excerpt":{"rendered":"<p>When being thankful is hard as a special needs parent this Thanksgiving, stop trying to be grateful and take comfort in this mercy and compassion.<\/p>\n","protected":false},"author":1,"featured_media":30973,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<img class=\"aligncenter wp-image-30973 size-full\" src=\"http:\/\/differentdream.com\/wp-content\/uploads\/2019\/11\/too-hard.jpg\" alt=\"When being thankful is hard as a special needs parent this Thanksgiving, stop trying to be grateful and take comfort in this mercy and compassion.\" width=\"600\" height=\"303\" \/>When being thankful is hard as a special needs parent\u2013\u2013and let's not beat around the bush, watching our children struggle doesn't lend itself to loud hosannas\u2013\u2013how do we approach Thanksgiving? How do we cultivate gratitude without sugar coating the challenges in our kids' lives? How can we be grateful when a child's condition is going from bad to worse, and we can find nothing to be grateful for?\n\nI stared down those questions more than once when our baby boy struggled to stay alive.\n\nThe first time was during my first Thanksgiving as a parent. By then our six-month-old had endured 2 major surgeries, a three week NICU stay, a week long PICU stay, two dozen early morning GI procedures, and an overnight hospital stay on Halloween weekend. I was sleep-deprived, grieving, and my breasts were sore after months of pumping milk for our tube-fed baby who could tolerate nothing but breast milk. The thought of being thankful for my child's precarious state of health and the pain our baby had endured was unimaginable. Cruel.\n\nI couldn't do it.\n\nThe week after my thankless Thanksgiving, I did what proud, new parents everywhere do. I composed a Christmas letter, complete with pictures of our baby boy in his elf costume, to mail to the many friends and family members who had faithfully prayed for us since our son's birth.\n\n<a href=\"https:\/\/www.hopeanew.com\/hopeanew-blog\/2019\/11\/19\/when-being-thankful-is-hard-as-a-special-needs-parent\"><strong>To read the rest of this post visit the blog at Hope Anew's website.<\/strong><\/a>\n\n<i><em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em><\/i>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3612],"tags":[237,526,1938,1145],"class_list":["post-30971","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-holidays","tag-christmas","tag-gratitude","tag-sacrifice","tag-thanksgiving"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>When Being Thankful Is Hard As a Special Needs Parent - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"When being thankful is hard as a special needs parent this Thanksgiving, stop trying to be grateful and take comfort in this mercy and compassion.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"When Being Thankful Is Hard As a Special Needs Parent - 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