{"id":30755,"date":"2012-08-23T07:00:26","date_gmt":"2012-08-23T12:00:26","guid":{"rendered":"http:\/\/f06.70c.myftpupload.com\/?p=6869"},"modified":"2012-08-23T07:00:26","modified_gmt":"2012-08-23T12:00:26","slug":"adopting-terminally-ill-children-one-familys-story-pt-3","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/adopting-terminally-ill-children-one-familys-story-pt-3\/","title":{"rendered":"Adopting Terminally Ill Children: One Family&#8217;s Story, Pt. 3"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title featured_image=&#8221;off&#8221; _builder_version=&#8221;4.16&#8243; title_font=&#8221;||||||||&#8221; title_text_color=&#8221;#42313A&#8221; title_font_size=&#8221;40px&#8221; meta_font_size=&#8221;14px&#8221; background_color=&#8221;#B4DBC0&#8243; custom_padding=&#8221;50px||50px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px||0px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.16&#8243; _dynamic_attributes=&#8221;src&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.2&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><em>Adoption changes families in a myriad of ways. For the past two days, Sue Badeau has been sharing the story of how adopting 20 children. 3 of those children had terminal diagnoses, changed their family. In <span style=\"text-decoration: underline;\"><a href=\"https:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\">Part 1<\/a><\/span>, you met Sue and her husband Hector and heard their adoption story. In <span style=\"text-decoration: underline;\"><a href=\"https:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-2\/\">Part 2<\/a><\/span>, she focused on the experience of adopting children with special needs. Today, in Part 3, Sue shares lessons they learned as they grieved for their sons.<\/em><\/p>\n<h3 style=\"text-align: center;\">Adopting Terminally Ill Children: One Family&#8217;s Story, Pt. 3<\/h3>\n<h4>Three Lessons Learned<\/h4>\n<ol>\n<li><strong>Everyone can heal and grow.<\/strong> Healing and growth may look different for each individual. We may never see the wholeness we are hoping for, but we can continue to work towards it. I learned this lesson at an early age from my grandfather as he showed me how he cared differently for the various plants in his vegetable garden so that each would have the best chance of growing and bearing fruit.\u00a0 I have come to understand that this analogy also applies to children\u2014they are not all easy to grow, like zucchini, but then, what a boring garden it would be if we grew nothing but zucchini!<\/li>\n<li><strong>There is as much value in the journey as in the destination<\/strong>. I know, I know, it sounds like a worn clich\u00e9, but we have found it to be true.\u00a0 Years ago, we went on a family hike and this message came home to me in a powerful way as I saw my small son Raj, who had been diagnosed with <a href=\"https:\/\/www.mayoclinic.org\/diseases-conditions\/cerebral-palsy\/symptoms-causes\/syc-20353999\"><span style=\"text-decoration: underline;\">cerebral palsy<\/span><\/a> and told that he would never walk, clambering along the hiking trail with his brothers and sisters.\u00a0 Years later as we experienced everything from teen pregnancy to a son in prison, I have had to remind myself again and again of this important lesson.<\/li>\n<li><strong>While God does not \u201cfix\u201d everything in the sense of removing all obstacles, curing all diseases, or unlocking all disabling conditions, He does, indeed, make all things new.<\/strong> I learned this after experiencing a car wreck\u2014I still have some scars and there are things I cannot do, yet I was changed by the experience and \u201cmade new\u201d in important ways.\u00a0\u00a0 And as I think about some my children viewed as most \u201cdamaged\u201d by the world\u2014whether physically or emotionally \u201cdamaged\u201d by all kinds of brutal early life experiences, turning to drugs, early pregnancies or other outlets for their pain\u2014I know that some people look at them and only see the wreck. But I like to look at them and see them as survivors.\u00a0 And I am always amazed how, in spite of the \u201cdamage\u201d they have sustained, they, through God\u2019s grace and healing power, are able to find amazing new ways to do old things that many of us take for granted\u2014communication, relationships, eating, moving, getting through the day.<\/li>\n<\/ol>\n<h4>Toolkit for Parents Caring for Terminally Ill Children<\/h4>\n<p>If I were to try to offer words of encouragement to parents caring for children with severe special needs and terminal illnesses, I would urge them to create a toolkit for themselves to help them make it through the dark times.\u00a0 Into the toolkit would go at least the following tools:<\/p>\n<ul>\n<li><strong>Knowledge<\/strong> \u2013 Get as much information about your child\u2019s condition, current state-of-the-art research, and treatment options as you can.<\/li>\n<li><strong>Self-care <\/strong>\u2013 When on an airplane, the safety instructions include these critical words, \u201cWhen traveling with a child, put your own oxygen mask on first.\u201d\u00a0 While this initially seems counterintuitive to parents, it is essential.\u00a0 You cannot care for anyone if you are out of oxygen yourself.\u00a0 Feed your soul\u2014make a personal <span style=\"text-decoration: underline;\"><a href=\"https:\/\/differentdream.com\/2011\/09\/self-care-for-the-caregiver\/\">self-care plan <\/a><\/span>and follow it.<\/li>\n<li><strong>Intimacy and affection<\/strong> &#8211; Nurture your relationships with <span style=\"text-decoration: underline;\"><a href=\"https:\/\/differentdream.com\/2011\/02\/12-ways-to-make-your-marriage-fun-again\/\">your spouse<\/a><\/span> and other people in your life that are important to you.\u00a0 They need you, you need them, and together you will create a strong team (the cord of 3 strands in Ecclesiastes 4:12) to meet the needs of your special child(ren).<\/li>\n<li><strong>Anger management techniques<\/strong> \u2013 Don\u2019t deny anger when it comes\u2014and it WILL come. Whether you become angry at the disease itself that plagues your child, the health care system, the schools, strangers on the street, yourself, or God, there will be times of anger.\u00a0 Learning to manage it in ways that are safe and healthy is key to coping with both the life and the grief you will experience on this journey.<\/li>\n<li><strong>Play<\/strong> \u2013 I can\u2019t say enough about the importance of laughter, silliness, and play with your children, the one who is dying as well as the others.\u00a0 \u201cLaughter is the best medicine\u201d may sound trite, but it is the gem of a significant truth.<\/li>\n<li><strong>Pray<\/strong> \u2013 God the Father had to bury his only begotten son.\u00a0 Surely, he understands and knows our grief.\u00a0 Talk to him.\u00a0 And listen to him.<\/li>\n<\/ul>\n<h3>Your Thoughts about Adopting Terminally Ill Children<\/h3>\n<p>Now that you&#8217;ve read the final installment in this series about adopting terminally ill children, what thoughts do you have? Leave your insights and comments below. To keep up with the Badeau&#8217;s future adventures, visit their website at <a href=\"http:\/\/www.badeaufamily.com\/\" target=\"_blank\" rel=\"noopener\">www.badeaufamily.com<\/a>.<\/p>\n<p><a href=\"https:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\"><span style=\"text-decoration: underline; font-size: large;\"><strong>Adopting Terminally Ill Children: One Family&#8217;s Story, Part 1<\/strong><\/span><br \/><span style=\"text-decoration: underline; font-size: large;\"><strong>Adopting Terminally Ill Children: One Family&#8217;s Story, Part 2<\/strong><\/span><\/a><\/p>\n<p><em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.<\/em><\/p>\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; background_color=&#8221;#b4dbc0&#8243; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;100px&#8221; content_max_width=&#8221;800px&#8221; _builder_version=&#8221;4.22.2&#8243; _dynamic_attributes=&#8221;title&#8221; header_font=&#8221;Rubik|500|||||||&#8221; header_text_color=&#8221;#44465f&#8221; 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saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_padding=&#8221;25px|0px|5px|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; module_class=&#8221;horizontal_optin_column_1&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; header_text_align=&#8221;right&#8221; header_text_color=&#8221;#45107a&#8221; header_3_font=&#8221;Dancing Script|700|||||||&#8221; header_3_text_align=&#8221;center&#8221; header_3_text_color=&#8221;#B4DBC0&#8243; header_3_font_size=&#8221;45px&#8221; custom_margin=&#8221;10px||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Subscribe for Updates from Jolene<\/h3>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_signup mailchimp_list=&#8221;JolenePhilo|89f719a52b&#8221; layout=&#8221;bottom_top&#8221; first_name_fullwidth=&#8221;off&#8221; last_name_field=&#8221;off&#8221; email_fullwidth=&#8221;off&#8221; module_class=&#8221;custom_emailoptin&#8221; _builder_version=&#8221;4.16&#8243; form_field_focus_background_color=&#8221;#42313A&#8221; background_enable_color=&#8221;off&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;16px&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#B4DBC0&#8243; button_border_width=&#8221;2px&#8221; button_border_radius=&#8221;0px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; button_custom_margin=&#8221;5px||||false|false&#8221; button_custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; border_width_all_fields=&#8221;2px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; header_font=&#8221;EB Garamond|600|||||||&#8221; header_text_color=&#8221;#B6452C&#8221; header_font_size=&#8221;50px&#8221; header_text_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1 style=\"text-align: center;\">Related Posts<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;current&#8221; show_more=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; header_text_color=&#8221;#42313A&#8221; meta_font=&#8221;||on||||||&#8221; read_more_font=&#8221;|||on|||||&#8221; read_more_text_color=&#8221;#B6452C&#8221; read_more_font_size=&#8221;12px&#8221; pagination_text_color=&#8221;#B6452C&#8221; pagination_font_size=&#8221;20px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Today Sue Badeau shares lessons she and her husband Hector learned as they grieved after adopting terminally ill children.<\/p>\n","protected":false},"author":1,"featured_media":30756,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<a href=\"http:\/\/differentdream.com\/wp-content\/uploads\/2012\/08\/Hector-and-Sue-Dec-2011.jpg\"><img class=\" aligncenter wp-image-6876\" title=\"Adoption of terminally ill children Hector and Sue Badeau\" src=\"http:\/\/differentdream.com\/wp-content\/uploads\/2012\/08\/Hector-and-Sue-Dec-2011-300x238.jpg\" alt=\"\" width=\"500\" height=\"398\" \/><\/a>\n\nAdoption changes families in a myriad of ways. For the past two days, Sue Badeau has been sharing the story of how adopting 20 children. 3 of those children had terminal diagnoses, changed their family. In <a href=\"http:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\">Part 1<\/a>, you met Sue and her husband Hector and heard their adoption story. In <a href=\"http:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-2\/\">Part 2<\/a>, she focused on the experience of adopting children with special needs. Today, in Part 3, Sue shares lessons they learned as they grieved for their sons.\n<h3 style=\"text-align: center;\">Adopting\u00a0 Terminally Ill Children: One Family's Story, Pt. 3<\/h3>\n<h4>Three Lessons Learned<\/h4>\n<ol>\n \t<li><strong>Everyone can heal and grow.<\/strong> Healing and growth may look different for each individual and we may never see the wholeness we are hoping for, but we can continue to work towards it. I learned this lesson at an early age from my grandfather as he showed me how he cared differently for the various plants in his vegetable garden so that each would have the best chance of growing and bearing fruit.\u00a0 I have come to understand that this analogy also applies to children \u2013 they are not all easy to grow \u2013 like zucchini \u2013 but then, what a boring garden it would be if we grew nothing but zucchini!<\/li>\n \t<li><strong>There is as much value in the journey as in the destination<\/strong>. I know, I know, it sounds like a worn clich\u00e9, but we have found it to be true.\u00a0 Years ago, we went on a family hike and this message came home to me in a powerful way as I saw my small son Raj, who had been diagnosed with <a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmedhealth\/PMH0001734\/\">cerebral palsy<\/a> and predicted that he would never walk, clambering along the hiking trail with his brothers and sisters.\u00a0 Years later as we experienced everything from teen pregnancy to a son in prison, I have had to remind myself again and again of this important lesson.<\/li>\n \t<li>While God does not \u201cfix\u201d everything in the sense of removing all obstacles, curing all diseases or unlocking all disabling conditions, He does, indeed, make all things new. I learned this after experiencing a car wreck \u2013 I still have some scars and there are things I cannot do, yet I was changed by the experience and \u201cmade new\u201d in important ways.\u00a0\u00a0 And as I think about some my children viewed as most \u201cdamaged\u201d by the world \u2013 whether physically or emotionally \u201cdamaged\u201d by all kinds of brutal early life experiences \u2013 turning to drugs, early pregnancies or other outlets for their pain\u2013 I know that some people look at them and only see the wreck \u2013 but I like to look at them and see them as survivors.\u00a0 And I am always amazed how \u2013 in spite of the \u201cdamage\u201d they have sustained they\u00a0 - through God\u2019s grace and healing power - are able to find amazing new ways to do old things that many of\u00a0 take for granted \u2013 communication, relationships, eating, moving, getting through the day.<\/li>\n<\/ol>\n<h4>Toolkit for Parents Caring for Terminally Ill Children<\/h4>\nIf I were to try to offer words of encouragement to parents caring for children with severe special needs and terminal illnesses, I would urge them to create a toolkit for themselves to help them make it through the dark times.\u00a0 Into the toolkit would go at least the following tools:\n<ul>\n \t<li><strong>Knowledge<\/strong> \u2013 Get as much information about your child\u2019s condition, current state-of-the-art research and treatment options as you can.<\/li>\n \t<li><strong>Self-care<\/strong>\u2013 When on an airplane, the safety instructions include these critical words, \u201cWhen traveling with a child, put your own oxygen mask on first.\u201d\u00a0 While this initially seems counterintuitive to parents, it is essential.\u00a0 You cannot care for anyone if you are out of oxygen yourself.\u00a0 Feed your soul \u2013 make a personal <a href=\"http:\/\/differentdream.com\/2011\/09\/self-care-for-the-caregiver\/\">self-care plan <\/a>and follow it.<\/li>\n \t<li><strong>Intimacy and affection<\/strong> - Nurture your relationships with <a href=\"http:\/\/differentdream.com\/2011\/02\/12-ways-to-make-your-marriage-fun-again\/\">your spouse<\/a> and other people in your life that are important to you.\u00a0 They need you, you need them and together you will create a strong team (the cord of 3 strands in Ecclesiastes 4:12) to meet the needs of your special child(ren).<\/li>\n \t<li><strong>Anger management techniques<\/strong> \u2013 Don\u2019t deny anger when it comes \u2013 and it WILL come \u2013 whether you become angry at the disease itself that plagues your child, or the health care system, or the schools, or strangers on the street or yourself or God, there will be times of anger and learning to manage it in ways that are safe and healthy is key to coping with both the life and the grief you will experience on this journey.<\/li>\n \t<li><strong>Play<\/strong> \u2013 I can\u2019t say enough about the importance of laughter, silliness and play with your children \u2013 the one who is dying as well as the others.\u00a0 \u201cLaughter is the best medicine\u201d may sound trite, but it is the gem of a significant truth.<\/li>\n \t<li><strong>Pray<\/strong> \u2013 God the Father had to bury his only begotten son.\u00a0 Surely, he understands and knows our grief.\u00a0 Talk to him.\u00a0 And listen to him.<\/li>\n<\/ul>\n<h3><\/h3>\n<h3>Your Thoughts\u00a0 about Adopting Terminally Ill Children<\/h3>\nNow that you've read the final installment in this series about adopting terminally ill children what thoughts do you have? Leave your insights and comments for sUse below. To keep up with the Badeau's future adventures, visit their website at <a href=\"http:\/\/www.badeaufamily.com\/\" target=\"_blank\" rel=\"noopener\">www.badeaufamily.com<\/a>.\n\n<a href=\"http:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\">Part 1\nPart 2<\/a>\n\n<em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3581,3583],"tags":[37,3711,3712,3713,3714],"class_list":["post-30755","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-grief","category-spiritual-support","tag-adoption","tag-hector-and-sue-badeau","tag-hiv-boarder-babies","tag-special-needs-adoption","tag-terminally-ill-children"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Adopting Terminally Ill Children: One Family&#039;s Story, Pt. 3<\/title>\n<meta name=\"description\" content=\"Today Sue Badeau shares lessons she and her husband Hector learned as they grieved after adopting terminally ill children.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, 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