{"id":26238,"date":"2017-06-26T00:05:59","date_gmt":"2017-06-26T05:05:59","guid":{"rendered":"http:\/\/differentdream.com\/?p=26238"},"modified":"2017-06-26T00:05:59","modified_gmt":"2017-06-26T05:05:59","slug":"raise-health-care-self-advocate","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/raise-health-care-self-advocate\/","title":{"rendered":"How to Raise a Health Care Self-Advocate"},"content":{"rendered":"\n\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.4.2″][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.4.2″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.4.2″ custom_padding=”0px||0px|||”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.4.3″ _dynamic_attributes=”src”][\/et_pb_image][et_pb_text _builder_version=”4.9.4″ hover_enabled=”0″ sticky_enabled=”0″]

Once upon a time, my husband and I were our son’s sole health care advocates. For the first 4 years of his life, we faced numerous life and death decisions concerning surgeries, medical tests, and treatment. After those dramatic early years his health stabilized, and our decisions about his health care were more run-of-the-mill.<\/p>\n

When he was 15, medical tests showed another major surgery was needed. When our son, who had grown into a strong-willed, intelligent adolescent heard the news, he made clear to us and the surgeons that he expected to be part of the decision-making process. At first my husband and I were taken back by his demand. And then we did the math.<\/p>\n

In 3 short years, our son would turn 18, at which time he would be in charge of his own health. Therefore, we made everything regarding his upcoming surgery\u2013the pre-op tests, doctor consultations, even life and death decisions\u2013into a self-advocacy training exercise. Here’s what we learned about raising a health care self-advocate during that experience and as our son entered adulthood.<\/p>\n

    \n
  1. Write down your child’s medical history.<\/strong> You may remember what treatments (for physical, mental, and emotional ailments) your child received, but your child won’t. Our son has no explicit memories<\/strong><\/a> of the tests, treatments, and 7 surgeries he went through before he was 5. So when he was a young adult, I wrote a narrative that included the hospitals where the surgeries took place, the doctors and surgeons who treated him, and anything else I could remember. That medical history equips him to be a health care self-advocate.<\/li>\n<\/ol>\n

    To read the rest of this post, visit Key Ministry’s Special Needs Parenting blog.<\/strong><\/a><\/p>\n

    Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@” icon_placement=”left” image_max_width=”100px” content_max_width=”800px” _builder_version=”4.4.2″ _dynamic_attributes=”image,title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” locked=”off”]

    Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″][et_pb_comments _builder_version=”4.4.2″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.4.2″][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.9.2″ use_background_color_gradient=”on” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ background_color_gradient_direction=”159deg” custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.9.2″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.3.4″][et_pb_text _builder_version=”4.4.2″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false”]

    Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.3.4″][et_pb_signup mailchimp_list=”JolenePhilo|89f719a52b” layout=”bottom_top” first_name_fullwidth=”off” last_name_field=”off” email_fullwidth=”off” module_class=”custom_emailoptin” _builder_version=”4.4.2″ form_field_focus_background_color=”#42313A” background_enable_color=”off” custom_button=”on” button_text_size=”16px” button_text_color=”#42313A” button_bg_color=”#B4DBC0″ button_border_width=”2px” button_border_radius=”0px” button_font=”|||on|||||” button_use_icon=”off” button_custom_margin=”5px||||false|false” button_custom_padding=”0px|0px|0px|0px|false|false” custom_padding=”0px|0px|0px|0px|false|false” border_width_all_fields=”2px”][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.4.2″ custom_padding=”0px|||||”][et_pb_row _builder_version=”4.4.2″][et_pb_column type=”4_4″ _builder_version=”4.4.2″][et_pb_text _builder_version=”4.4.2″ header_font=”EB Garamond|600|||||||” header_text_color=”#B6452C” header_font_size=”50px” header_text_shadow_style=”preset1″]

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    Do you want your child with special needs to be a health care self-advocate? Here are seven ways to increase a child’s self-advocacy skills.<\/p>\n","protected":false},"author":1,"featured_media":26235,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"Do\n\nOnce upon a time, my husband and I were our son's sole health care advocates. For the first 4 years of his life, we faced numerous life and death decisions concerning surgeries, medical tests, and treatment. After those dramatic early years his health stabilized, and our decisions about his health care were more run-of-the-mill.\n\nWhen he was 15, medical tests showed another major surgery was needed. When our son, who had grown into a strong-willed, intelligent adolescent heard the news, he made clear to us and the surgeons that he expected to be part of the decision-making process. At first my husband and I were taken back by his demand. And then we did the math.\n\nIn 3 short years, our son would turn 18, at which time he would be in charge of his own health. Therefore, we made everything regarding his upcoming surgery\u2013the pre-op tests, doctor consultations, even life and death decisions\u2013into a self-advocacy training exercise. Here's what we learned about raising a health care self-advocate during that experience and as our son entered adulthood.\n

      \n \t
    1. Write down your child's medical history.<\/strong> You may remember what treatments (for physical, mental, and emotional ailments) your child received, but your child won't. Our son has no explicit memories<\/strong><\/a> of the tests, treatments, and 7 surgeries he went through before he was 5. So when he was a young adult, I wrote a narrative that included the hospitals where the surgeries took place, the doctors and surgeons who treated him, and anything else I could remember. That medical history equips him to be a health care self-advocate.<\/li>\n<\/ol>\nTo read the rest of this post, visit Key Ministry's Special Needs Parenting blog.<\/strong><\/a>\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>\n\nSave<\/span>\n\nSave<\/span>\n\nSave<\/span>","_et_gb_content_width":"2880","footnotes":""},"categories":[3560,3559,3567,3561],"tags":[2790,4040],"class_list":["post-26238","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-different-dream","category-how-tos","category-special-needs-parenting","tag-medical-power-of-attorney","tag-self-advocacy"],"yoast_head":"\nHow to Raise a Health Care Self-Advocate - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Do you want your child with special needs to be a health care self-advocate? 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