{"id":25940,"date":"2017-04-19T00:05:38","date_gmt":"2017-04-19T05:05:38","guid":{"rendered":"http:\/\/differentdream.com\/?p=25940"},"modified":"2017-04-19T00:05:38","modified_gmt":"2017-04-19T05:05:38","slug":"child-special-needs-numbers","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/child-special-needs-numbers\/","title":{"rendered":"A Child With Special Needs Is More Than Numbers"},"content":{"rendered":"\n\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.4.2″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false” global_colors_info=”{}”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.4.2″ custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.4.3″ _dynamic_attributes=”src” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.9.4″ global_colors_info=”{}”]

A child with special needs is more than numbers. You know that, I know that, and as guest blogger Kimberly Drew reminds us, God knew that when he knit our babies together in the womb. She encourages parents to look beyond test results and to reinforce the fact that every child with special needs is more than numbers. We are all more than the sum of our parts.<\/em><\/p>\n

A Child with Special Needs Is More Than Numbers<\/h5>\n

Life begins with numbers.
Nine months.
Centimeters dilated.
Hours of labor.<\/p>\n

But it doesn\u2019t stop there. Everything is measured in numbers.<\/p>\n

Baby\u2019s weight and length.
Head circumference.
Apgar score.
Breathing rate.
Ounces per feeding.
Diapers a day.<\/p>\n

Numbers, numbers, numbers. You come home from the hospital and count the hours between feedings, the hours you get to sleep, and before long you count the weeks it took to see your baby smile. For parents of neuro-typical children the numbers start to spread out into months.<\/p>\n

Clothing by month.
Age by month.
Milestones by month.<\/p>\n

But for parents of children with special needs, the numbers can take a different turn and exact an emotional toll. For instance, when your preemie baby doesn\u2019t look her age and every stranger who stops to talk to you requires a \u201cdisclaimer\u201d about her size. For parents of children with physical and mental disabilities the charts, measuring, and numerical markers aren\u2019t fun.<\/p>\n

We had an eligibility evaluation for our youngest who was adopted with special needs. For an hour and a half the test administrator examined everything from how she responds to a voice to how she tries to use her pointer finger. All the while, the test administrator recorded results in her computer. At the end of the test, scores came out.<\/p>\n

A typical child’s score is zero.
An advanced child’s is a positive number.
A child with delays has a negative score.<\/p>\n

The negative section is even divided into sections. Some negatives are okay\u2026some are really bad. Our daughter was in the \u201creally bad\u201d section, color-coded in red. Just in case we weren\u2019t concerned about her development already, the RED WARNING color made it more apparent that she is severely behind.<\/p>\n

Because we have a fifteen-year-old with disabilities, I know this is just the beginning of the scales and charts that we will talk about with a team of people. Her milestones will be measured in the \u201cminis.\u201d<\/p>\n

She\u2019s not sitting up, but she raises her arms 25% of the time to reach for me.
One of our older daughter\u2019s goals is to stand up without assistance 3 out of 4 times.<\/p>\n

Our daughters’ worlds literally and figuratively revolves around numbers. As parents of a child with special needs, we can start to drown in them. The negative reds can upset us if we let them. It\u2019s important for me, for all of us, to keep these numbers in perspective. When we feel like we’re getting lost in them,\u00a0 we need to remember that the God who determines the number of stars and names them all, also knows the number of hairs on my daughters’ heads because they matter that much to him. (Psalm 147:4, Matt. 10:30)<\/p>\n

We should remember that the world looks at the outward appearance, but the Lord looks at the heart. (1 Sam. 16:7) He does not measure the same way that the world does. My girls are not a number to him, they are not a chart or a growth curve. Neither are your children!<\/p>\n

When you are drowning in the numbers, find rest and peace in Psalm 139: 13\u201318, paying special attention to the numbers in verses 17 and 18.<\/p>\n

13\u00a0For you\u00a0formed my inward parts;
you\u00a0knitted me together in my mother’s womb.
14\u00a0I praise you, for I am fearfully and wonderfully made.
Wonderful are your works;
my soul knows it very well.
15 My frame was not hidden from you, when I was being made in secret,
intricately woven in\u00a0the depths of the earth.
16\u00a0Your eyes saw my unformed substance;
in your\u00a0book were written, every one of them,
the days that were formed for me,
when as yet there was none of them.
17 How precious to me are your thoughts, O God!<\/strong><\/em>
How vast is the sum of them!<\/strong><\/em>
18 If I would count them, they are more than the sand.<\/strong><\/em>
I awake, and I am still with you.\u201d<\/strong><\/em><\/p>\n

Your Thoughts?<\/h5>\n

How do you define your child with special needs with more than numbers? Share your insights in the comment box!<\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false” global_colors_info=”{}”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”http:\/\/differentdream.com\/wp-content\/uploads\/2021\/06\/Kimberly-Drew.jpg” icon_placement=”left” image_max_width=”100px” content_max_width=”800px” _builder_version=”4.9.4″ _dynamic_attributes=”title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” locked=”off” global_colors_info=”{}”]

Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly\u2019s\u00a0 desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website,\u00a0<\/span>Promises and Perspective<\/a>.<\/em><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_comments _builder_version=”4.4.2″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″ global_colors_info=”{}”][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.4.2″ global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.9.2″ use_background_color_gradient=”on” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ background_color_gradient_direction=”159deg” custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.9.2″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.3.4″ global_colors_info=”{}”][et_pb_text _builder_version=”4.4.2″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”]

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Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_blog fullwidth=”off” posts_number=”3″ include_categories=”current” show_more=”on” _builder_version=”4.4.2″ header_text_color=”#42313A” meta_font=”||on||||||” read_more_font=”|||on|||||” read_more_text_color=”#B6452C” read_more_font_size=”12px” pagination_text_color=”#B6452C” pagination_font_size=”20px” global_colors_info=”{}”][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n\n","protected":false},"excerpt":{"rendered":"

A child with special needs is more than numbers, but that can be hard to remember when negative numbers are all doctors and educators share with parents.<\/p>\n","protected":false},"author":1,"featured_media":25942,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"A<\/em>\n\nA child with special needs is more than numbers. You know that, I know that, and as guest blogger Kimberly Drew<\/a> reminds us, God knew that when he knit our babies together in the womb. She encourages parents to look beyond test results and to reinforce the fact that every child with special needs is more than numbers. We are all more than the sum of our parts.<\/em>\n

A Child with Special Needs Is More Than Numbers<\/h5>\nLife begins with numbers.\nNine months.\nCentimeters dilated.\nHours of labor.\n\nBut it doesn\u2019t stop there. Everything is measured in numbers.\n\nBaby\u2019s weight and length.\nHead circumference.\nApgar score.\nBreathing rate.\nOunces per feeding.\nDiapers a day.\n\nNumbers, numbers, numbers. You come home from the hospital and count the hours between feedings, the hours you get to sleep, and before long you count the weeks it took to see your baby smile. For parents of neuro-typical children the numbers start to spread out into months.\n\nClothing by month.\nAge by month.\nMilestones by month.\n\nBut for parents of children with special needs, the numbers can take a different turn and exact an emotional toll. For instance, when your preemie baby doesn\u2019t look her age and every stranger who stops to talk to you requires a \u201cdisclaimer\u201d about her size. For parents of children with physical and mental disabilities the charts, measuring, and numerical markers aren\u2019t fun.\n\nWe had an eligibility evaluation for our youngest who was adopted with special needs. For an hour and a half the test administrator examined everything from how she responds to a voice to how she tries to use her pointer finger. All the while, the test administrator recorded results in her computer. At the end of the test, scores came out.\n\nA typical child's score is zero.\nAn advanced child's is a positive number.\nA child with delays has a negative score.\n\nThe negative section is even divided into sections. Some negatives are okay\u2026some are really bad. Our daughter was in the \u201creally bad\u201d section, color-coded in red. Just in case we weren\u2019t concerned about her development already, the RED WARNING color made it more apparent that she is severely behind.\n\nBecause we have a fifteen-year-old with disabilities, I know this is just the beginning of the scales and charts that we will talk about with a team of people. Her milestones will be measured in the \u201cminis.\u201d\n\nShe\u2019s not sitting up, but she raises her arms 25% of the time to reach for me.\nOne of our older daughter\u2019s goals is to stand up without assistance 3 out of 4 times.\n\nOur daughters' worlds literally and figuratively revolves around numbers. As parents of a child with special needs, we can start to drown in them. The negative reds can upset us if we let them. It\u2019s important for me, for all of us, to keep these numbers in perspective. When we feel like we're getting lost in them,\u00a0 we need to remember that the God who determines the number of stars and names them all, also knows the number of hairs on my daughters' heads because they matter that much to him. (Psalm 147:4, Matt. 10:30)\n\nWe should remember that the world looks at the outward appearance, but the Lord looks at the heart. (1 Sam. 16:7) He does not measure the same way that the world does. My girls are not a number to him, they are not a chart or a growth curve. Neither are your children!\n

When you are drowning in the numbers, find rest and peace in Psalm 139: 13\u201318, paying special attention to the numbers in verses 17 and 18.<\/p>\n

13\u00a0For you\u00a0formed my inward parts;\nyou\u00a0knitted me together in my mother's womb.\n14\u00a0I praise you, for I am fearfully and wonderfully made.\nWonderful are your works;\nmy soul knows it very well.\n15\u00a0My frame was not hidden from you,\u2028when I was being made in secret,\nintricately woven in\u00a0the depths of the earth.\n16\u00a0Your eyes saw my unformed substance;\nin your\u00a0book were written, every one of them,\nthe days that were formed for me,\nwhen as yet there was none of them.\n17\u00a0How precious to me are your\u00a0thoughts, O God!\u2028<\/strong><\/em>\nHow vast is the sum of them!<\/strong><\/em>\n\u202818\u00a0If I would count them, they are more than\u00a0the sand.\u2028<\/strong><\/em>\nI awake, and I am still with you.\u201d<\/strong><\/em><\/p>\n\n

Your Thoughts?<\/h5>\nHow do you define your child with special needs with more than numbers? Share your insights in the comment box!\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>\n\nSave<\/span>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3615,3583],"tags":[3705,3791,4026],"class_list":["post-25940","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-encouragement","category-spiritual-support","tag-guest-blogger","tag-kimberly-drew","tag-test-results"],"yoast_head":"\nA Child With Special Needs Is More Than Numbers - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"A child with special needs is more than numbers, but that can be hard to remember when negative numbers are all doctors and educators share with parents.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Child With Special Needs Is More Than Numbers - 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